The title might be a little much, but it does make me smile so it's staying. And it's oh so true, because we are ALL tired of this sweet baby not being able to poop.
Micah has scar tissue from the surgery closing up his colon and causing things to back up. We had two doctors miss it, even with them sticking their fingers up in there and feeling around, but finally our surgeon got back into town and we got to see her. She caught it pretty quickly, luckily. So when we were being diagnosed recently with enterocolitis? Yeah. He didn't have it. We were giving him antibiotics that he didn't need. Which makes me kind of upset because I hate giving him medications that he doesn't need. I also hate when I put my trust in a doctor and they miss something so important. It's annoying, and I know they're only human and it happens, but I feel like if they're going to say that they treat Hirschsprung's then they should know the common problems associated with it. That's just me, though, I guess. It's not like we can do much about it except hope that it's always our own surgeon on call.
As always with Hirschsprung's, the treatment isn't glamorous. We got some numbing lubrication and a dilator stick that we put in his bum twice a day to stretch and break down the scar tissue. We do this for at least a month, maybe longer. And even though the lube has numbing medications in it, he can totally feel it. He screams so hard his face turns bright red. I hate it!!! I need to do it to help him, but I hate that it hurts him. There's so many things about this disease that hurt him and make him uncomfortable.... IF ONLY HE COULD JUST POOP! And he will be able to, one day, without any help from us. We'll get there. It's just discouraging that there's always something else happening to stop us from getting there. We're lucky to have such a good surgeon that catches these things quickly.
So moms, if your baby is only pooping small amounts at a time after surgery, I would take them in and ask them specifically to look for this. Micah was bleeding, but it wasn't from infection it was from the stitches in his colon. Micah was distended from the poop backing up and the blood was brighter red than from enterocolitis. He was also very fussy.
Q&A from last time:
Our little guy ended up staying for two weeks in the hospital, we had to change our plans because we had only planned on being there for one week. I would for sure plan for a little extra time just in case. It sometimes takes longer for their systems to wake up, which was the case for our little guy.
Our little guy ended up staying for two weeks in the hospital, we had to change our plans because we had only planned on being there for one week. I would for sure plan for a little extra time just in case. It sometimes takes longer for their systems to wake up, which was the case for our little guy.
As always you can ask questions if you want. I know that it made it easier on me talking to other moms who had been through this.
I dont know how much it will help but do a drop or two of the peppermint on his tummy and rub it in clockwise... I will also try and get you some stuff for scar tissue if I can get any small sample bottles! maybe that will help!
ReplyDeleteThank you! We would love to try anything!
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